Mary Ellen: I am Home
Missouri is facing a serious human rights crisis. Budget cuts, delayed services, and system errors have left thousands of people with developmental disabilities without the support they need to live independently and with dignity. These gaps make it harder for people to take part in their communities and live stable, full lives.
Mary Ellen’s story shows the real impact of these challenges. In November 2023, she was living independently, working, and contributing to her community. After a health crisis, her Medicaid coverage was mistakenly classified under Expansion Coverage instead of the Aged, Blind, and Disabled (ABD) category. This error blocked access to critical funding through the Department of Mental Health (DMH) and kept her from essential supports such as supportive housing, day programs, and personal care.
Despite persistent efforts from her sister, Marilyn, and her Family Navigator, the Medicaid office did not fix the error. Mary Ellen’s independence and quality of life were deeply affected. By July 2024, her Medicaid was finally approved, but the delay meant she still could not access needed supports. As a result, Mary Ellen was placed in a Skilled Nursing Facility more than 60 miles from her family. This unnecessary isolation made her emotional and physical challenges worse and showed a violation of the Olmstead Act.
Sunnyhill’s Advocacy and Family Navigation team worked tirelessly to protect Mary Ellen’s rights under the Olmstead Act, helping her move to a less restrictive, community-based home. After a year of dedicated advocacy, she is now thriving, safe, supported, and connected to her family and community.
Mary Ellen’s story is one example of the long-term effects of delayed services, funding freezes, and system challenges. Across Missouri, many people with developmental disabilities face similar struggles, navigating complex systems, experiencing unnecessary institutionalization, and trying to access the supports they need to live independently and fully.
By supporting people and families in navigating complex systems and accessing services, Sunnyhill helps individuals with developmental disabilities regain independence, stability, and dignity while building stronger, more inclusive communities across Missouri.